Moving from “Burden” to “Participant”, a paradigm shift in the roles the 1st generation can play in the extended family.

I hear this at least once a week – someone will state they don’t want to be a burden on their family. They don’t want to live with adult children, they don’t want to ask for help if they live alone. It hurts my heart to hear this, I learn so much from the Elders I know and enjoy sharing time and stories. I don’t want to see my role in my family change from participant — from being essential to our joyous and goal-oriented function — to feeling that I have nothing of value to contribute and would only be a draw on resources. A “burden”.

 

New American Dictionary defines burden thus:
burden |ˈbərdn|noun
1 a load, esp. a heavy one.
• a duty or misfortune that causes hardship, anxiety, or grief; a nuisance
• the main responsibility for achieving a specified aim or task
• a ship’s carrying capacity; tonnage:

2 (the burden) the main theme or gist of a speech, book, or argument
• the refrain or chorus of a song. (italics mine)

How did we come to believe that as we age in our family, our role evolves from essential service to a “misfortune that causes hardship, anxiety, grief”, or that we become a “nuisance”??? I have fixed ideas about how this shift from essential, valued, integrated member of the family disintegrated in our Post WWII culture, (you can find them addressed in Chapter One of “Holding Hands: Journeys with the Aging Family” to be released in 2013). More important here is refuting the myth of the invisible, devalued, aging adult and moving from “burden” to “participant” in the co-generational family.
The “burden” concept begs the question, “What do we need to change so that Elders stop defining themselves and their needs as a burden?”  How do we help them quantify the value they bring to the family?
It would be nice if Elders in a co-generational setting were more visible in our media. Portrayals in popular culture “cameo” grandparents, aunts and uncles. They are not part of the weekly story line, and are often written out of our own storylines as well.
This invisibility comes from both sides. Our aging parents, who began their families in the neo-television/post WWII era, also have no model for integrating parents. Likely, they moved away from their own families of origin to the suburbs after the war, leaving their own parents to the care of each other, their siblings or a child who stayed geographically close. To have parents live with us after WWII was interpreted as a weakness – not cutting “apron strings” or being overly involved. “You aren’t going to let your parents tell you what to do, are you?” as though taking advice from those who have been there/done that, would be shameful. Not independent. Not trendy.

Our very narrow tolerance of anything “different” bled into the way we learned to not care for our Elders. On the other end of the parenting spectrum, we were expected to cut our children loose at the earliest legal age and start planning our midlife, renewed “independent, Golden Years” with a sense of relief that all that family stuff was done, checked off the to-do list of life. I’m here to tell you, that was all a bunch of hooey.
What we gained instead were expensive and low-quality institutions to house Elders, middle-aged parents suffering from “empty nest syndrome”, new retirees suffering from a lack of purpose and sense of value. I stand firmly behind the belief, from four decades of observation and one of professional exposure, that humans are most decidedly NOT meant to be independent, autonomous islands in the stream. We hunger for connectedness, integration, participation, feeling valued and loved, and contributing to family and community. The tribal model of survival is as ancient as our earliest recorded histories, there is a reason why. This experiment of division has not promoted individual or family health as our members have aged.  It fractured family resources rather than concentrating family wealth and resources of time, and now creates a discontent in the Elder generation which too often leads to great feelings of sadness and loss. Where they may desire connection and support, they deny their own needs because somewhere along the line they bought the lie that to do so would be burdensome to the very people they gave life and love to.
This is wrong.

Recognizing how we got here is part of the solution. The other part is asking yourself how you show  you recognize the contribution your parents, aunts and uncles, Elder family friends make in your life now. Reminiscing is great, but subtly reinforces the concept that those days of value have passed.

  • Why is their presence important NOW?
  • How do they add value to your life NOW?
  • What could you not do without them for NOW?

In the early self help years, we called these “ego strokes” and they developed a reputation for being unhealthy. They aren’t. We all need to know that we matter to the people around us, and no age cohort needs that more than the one that has been rendered invisible, comical, burdensome in 40 years of televised cultural teaching.
What can your parents teach your children – essential family or cultural knowledge, survival skills, games and playfulness – that you can’t due to limited resources or time? Looking at the generations that stand on either side of you, what do they have to offer each other? Child care? Cooking lessons? Learning to budget money? Homework supervision? Being the licensed driver while a teen gets their supervised hours in? Living models of history?  Can your child learn how to express love and service to an Elder family member, just because it’s the right thing to do? (Teach them now with your parents, and they will teach your grandchildren in time).
This is how we rebuild a cultural model of family members taking care of each other across the lifespan. This model is seamless, no one gets left out. Everyone knows they are important to the quality of someone else’s life, to the security of the family and it’s members, and love and respect have ample room to grow.
Referring back to that original definition, the alternate to “nuisance” was:
2 (the burden) the main theme or gist of a speech, book, or argument
• the refrain or chorus of a song.

I choose to think this is where the descriptor as Elder family member being “a burden” first came from. As the historians of our family and culture, that is a much more tender and fitting definition of those who have come before us, shaped us, nurtured us, raised us up. May our Elder Generation come again to be revered as carrying the chorus of our family song.

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Happy Father’s Day,
Katherine

Have distanced from your Elders? Why do you think that happened?

I was listening to Brene Brown on Oprah’s Super Soul Sunday recently.  She made a statement that struck me to the core. Initially, I thought of it in terms of my own life parenting adult children, working on building a new relationship. Musing on it for a couple days, though, I realized that this contributes to why — as a culture of middle aged adults — we distance from our family Elders. Brene stated “When we lose our capacity for vulnerability, joy becomes foreboding.”

“What makes us vulnerable?” Risking the pain of losing a parent you love and adore and know really well is being REALLY vulnerable to loss, pain, self doubt and regret. As our parents and other Elders age, we know that we will, ultimately, have to say goodbye. We will experience loss (statistically speaking). To fully engage with our parents as they age, as their abilities change or decline, as they need us more as advocates and companions and not just as children, is to open ourselves up to the pain of letting them go after becoming very engaged and attached. That is something, perhaps, worth defending your heart against (or not, more on that to follow).

The second part of that quote is that “Joy becomes foreboding”. When we are afraid of being vulnerable and truly open to the moment without fear of what may or may not happen down the road, even happy moments generate tension. When I had a great day with my mother, I often felt pre-emptive grief, realizing that these were special days and numbered. How much better it would have been for both of us if I could have just experienced the joy without the foreboding. Would I have shown up for her better? More often? It is something I contemplate in other relationships now.

There are many reasons why people distance from aging relatives and friends.  Their changing or dissolving abilities challenge us.  It isn’t easy to be with some people — communication is difficult due to physical changes (loss of hearing for example); cognitive changes (from mild to advanced dementia, depression and ensuing negativity), to powerlessness which makes people feel hopeless for any positive change in their situations.  Hopelessness is hard to cope with in someone we love, someone we want to help out.  Too often it seems that our Elders don’t want help, they just want to complain.  This may actually be more a symptom of depression (which is a common and treatable disease among Elders), than an overall personality change.

We may distance because WE feel powerless and hopeless.  “There’s nothing I can do, anyway.”  (A self-fulfilling prophesy if ever there was one).  “They don’t want my help” (No, but they might want your attention, to know that they aren’t alone in this last walk around the block).  “They live too far away” (how can you mitigate that through phone calls or setting them up with social media?).

This is what I have learned about distancing and avoidance.  Our parents will likely precede us in death (mine already have).  In the case of my father’s death, he was young and it was unexpected.  There was no planning for, preparing for, working out old issues.  It just happened, and there we all were, carrying around the things left unsaid and undone.  That is the stuff regrets are made of.  Regret, like disappointment, is an emotional experience I go out of my way to avoid.

My mother’s last years were quite different.  Yes, I often woke up in the middle of the night with a start and wondered if she had just fallen.  Yes, we lived from crisis to crisis because there was a lack of communication and planning for quite predictable events.  Yes, some days I thought a week-long rest in the local behavioral health inpatient unit would be just the ticket for me (thankfully I never had to use that extreme back up plan).  In the long run though, I have powerful memories of my mother.  Her grandchildren, who engaged with her often showering her with love and attention and likewise being recipients of the same — have great stories to share.  In her last years, my mother imparted her values, her humor, her resiliency on that next generation.  That didn’t happen all at once but over time, over ice cream and Scrabble boards, card games and coloring books, Sunday dinners held at her house even if the best she did was Shake and Bake chicken strips, mashies and salad.  We watched together as her abilities diminished.

My mother’s passing came as a completion of several years of work in which we loved on her, were devoted to her comfort and quality experiences.  With our help, she remained in her home until just shy of her 88th birthday, moving to an adult foster home the week before.  I sat with her daily.  We knew her favorite music, and it played in the background.  We knew the stories she liked to hear re-told, and we shared them.  We placed phone calls to people she needed to hear loved her, one more time.  Our pastor came and sorted out some last issues around shame.  When my mother passed, it was quiet, gentle, complete.  I have never looked back and thought “I wish I had only….”, because we chose to be present with her.  Choices were made that were temporary sacrifices for a lifetime of peace (mine and my children’s).  When we think of my mom and the void her absence sometimes creates for us, it is with a sense of love and acceptance.  There is no guilt.  No regret.  We allowed ourselves to be vulnerable to the pain, and in the process, allowed ourselves to experience the love and  joy that spending time with her gave.

 

I challenge you to look at current patterns with  Elder family members. What stands in the way of regular communication: Geographical distance? Technological deficits? Unresolved relationship issues? The belief that parents are the responsibility of another besides you? Time constraints?  Upon further examination, are any of those things possibly excuses to help you maintain a safe emotional distance from the reality of aging or end of life issues, for yourself or your parents? Feel free to comment below, and as always, feel free to share this blog with others walking this middle of life walk.

Be seen! Be heard!

When I was a child, I was often reminded “children should be seen and not heard.”  I believe that profound piece of social correction came from my great-grandmother’s Victorian era, passed on to my father.   Though he was kind, he was much older than most of my peers’ parents, and perhaps less tolerant of excessive noise and fidgeting.  His message was clear:  “Be invisible.  Don’t speak for your needs, don’t contradict your parents, don’t whine, don’t interrupt.  What adults are talking about is important.”

It troubles me that this same correction seems to be the social standard for Elders, as well, to be “Seen and not heard” and fosters myths about their plight.  “Don’t ask for help, no one will come.” “Don’t complain, there’s nothing you can do about your situation anyway.”  “Don’t contradict your doctor, because s/he knows best.”  “Don’t talk of pain, or loss, or fears, because you don’t want to be a burden and no one wants to hear it.” 

My work with seniors suffering from depression and anxiety, validates my awareness that unspoken concerns create the foundation for emotional health problems, even in those who never suffered them in younger years.  Some Elders, when they feel they have lost their voice, become withdrawn and isolate from family and friends.  They don’t feel good, and don’t want anyone to know about it.  Others react out of anger, a last ditch effort to show they still have power.  They take pain and make it mean something, not always in a proactive or productive manner.  Many hopeless or powerless Elders use “no” or refusal as a way to show they still have some of what makes them “them” left. 

Somewhere in our cultural dialogue, honestly sharing fears, hurts and losses translates to becoming a burden, and it is time to write a new story.  Rarely do I hear adult children speak of their parent’s ills as burdensome.  They voice concern, they want their parents to be comfortable, content and relaxed as they move through their days.  It is the Elder generation that walls up against sharing, as if through some externally imposed sense of shame, do not have cultural permission to reveal what is really happening with them.  Denial and minimizing are dangerously common issues, and one I faced with my own mother even though I had the therapeutic communication and nursing education to try and draw her out.  Her lack of sharing brought many trips to the local emergency department for crisis management, when had we gotten more honest information earlier, might have been resolved with a simple office call and medication adjustment. 

Our situation was in no means unique.  I have the benefit of working with a dozen or so highly functional, independently living albeit clinically depressed Elders every day.  The denial and avoidance of shame for becoming a recipient of care and attention instead of the provider is the daily norm. Emotional health dictates that we speak our truth and our needs, at every age, because unspoken feelings fester, resentments develop and once strong and capable adults begin to see themselves as victims of aging.  Too often I have people tell me they wonder why they must still wake up in the morning (which is passive suicidal ideation).  Sharing one’s fears, limitations or needs is often confused with relinquishing autonomy, but can be vitally important for safety and comfort.